Global Registry of Alopecia Areata Disease Severity and treatment Safety - Ireland (GRASS - Ireland)

GRASS-Ireland is an observational study collecting and analysing the data of adults and children with Alopecia Areata (AA) in Ireland over their lifetime. As an encounter-based registry, data will be collected from each interaction for AA-specific care by investigators at selected sites, on an ongoing basis using a secure, online platform. This data will be used to better understand the background, treatments and outcomes of people with AA. This will be used for advocacy and to support planning of services, management and assistance of this group. The registry may also be useful to identify patients who could participate in suitable clinical trials and support pharmacovigilance studies. The information generated will be of interest to physicians, researchers, health service providers, regulatory authorities, the pharmaceutical industry and persons with AA. It will guide the development of international best practice standards and the treatment strategies to meet these. GRASS – Ireland is a founding member of a collaborative, global network of sovereign GRASS registries that aim to better understand the health, well-being and treatment of people with AA. **Purpose:** Alopecia Areata (AA) is an autoimmune hair loss condition that affects approximately 2% of the population. It typically presents with patchy to complete loss of scalp hair, though other hair bearing sites and the nails can also be affected. Research shows that AA has a major impact on physical and psychological health. The aim of this project is to establish an Irish AA patient registry, which enables clinicians to record long-term, real-world data.This data will be pivotal in informing clinical **Coverage:** National and International, the study duration is ongoing.