Results
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National Kidney Disease Surveillance System (NKDSS) and Quality Assurance Programme (QA)
The NKDSS is one of the largest linked longitudinal surveillance systems in Ireland. It captures both regional-level data from laboratory and regional HIPE systems and links this data to national datasets such as the ESKD registries and CSO Vital Statistics. …
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Irish Prostate Cancer Registry of Ireland (IPCOR)
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. **Purpose:** To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate …
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Tusla - Performance and Activity Datasets
Datasets of key performance and activity metrics and indicators defined for Tusla services as follows: - Child Protection and Welfare Services; - Alternative Care Services (incl. foster care, residential care, aftercare, adoption); - Family Support Services; - Tusla Education Support …
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Irish National Rare Kidney Disease Registry
Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of expertise, which became a full member of the RITA European Reference Network in …
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TILDA- The Irish Longitudinal Study on Ageing
TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs …
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National Incident Management System (NIMS)
National Incident Management System (NIMS) is the principal source of national data on incident activity for the Irish health and social care service. It has been designated as the primary system for end to end risk management of all incidents …
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National Thoracic Surgery Outcomes Data previously included under Cardiac Surgery Registry- Galway
This is a register for all patients who attend Galway University Hospital and undergo thoracic surgery. **Purpose:** To measure the quality of care of adult thoracic surgery and provide information for quality improvement and research. To encourage improvement of clinical …
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Patient Care Report (PCR)
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient at ED/destination facility. In the event of an ambulance service not utilising the …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology healthcare registry surveillance -
Organisation for Economic Co-operation and Development (OCED) Health Data* (2017 template)
OECD Health Data, maintained by the OECD, enables analyses and lessons to be drawn from comparisons of the healthcare systems of the 35 member states. **Purpose:** The purpose of this data collection is to provide a comprehensive source of comparable …
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National Self-Harm Registry Ireland (NSHRI) Previously National Self-Harm Registry Ireland)
The NSHRI is a national system of population monitoring for the occurrence of self-harm in Ireland. **Purpose:** The NSHRI is a national surveillance system which gathers information on hospital presenting self-harm at Emergency Departments in all hospitals across Ireland. The …
Publisher: National Suicide Research Foundation · Updated: 2026-03-19 EHDS clinical-data public-health registry -
National Spinal Injuries Unit
This is a register for all Spinal patients referred for consultation/ admission to the Mater Hospital. It uses Patient Advocate Tracking System (PATS) software. **Purpose:** To capture all spinal injury consultations, referrals, OPD & admissions to the Mater Hospital (does …
Publisher: National Spinal Injuries Unit · Updated: 2026-03-19 EHDS Ireland epidemiology surveillance -
The Irish Atopic Eczema Systemic Therapy Register (ASTAR)
ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-modulatory therapy (e.g. ciclosporin, azathioprine, methotrexate or biologic treatments). The study …
Publisher: National Skin Registry Solutions · Updated: 2026-03-19 EHDS epidemiology healthcare surveillance -
Diabetic RetinaScreen (The National Diabetic Retinol Screening Programme) Previously Diabetic RetinaScreen (National Screening Register)
Diabetic RetinaScreen maintains a population register containing demographic data of the eligible people diagnosed with Type 1 or Type 2 Diabetes aged 12 years and over for the purposes of call/recall annual screening. It also contains clinical data in order …
Publisher: National Screening Service · Updated: 2026-03-19 Ireland epidemiology health public-health -
Very Low Birth Weight Infants in the Republic of Ireland
Hospitals submit their data to the Vermont Oxford Network. The VON returns the data on the infants born in the Republic of Ireland to NPEC and this centre subsequently analyses it and publishes an annual report. General data from all …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 clinical-data epidemiology public-health -
Neonatal Therapeutic Hypothermia Audit
For the national neonatal TH review, medical records are the primary source of information. Data were collected on site in the 19 maternity units/hospitals and neonatal intensive care units or special care baby units (NICU/SCBU) in the Republic of Ireland. …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS public-health registry surveillance -
National Paediatric Mortality Register (NPMR)
The Paediatric Mortality Register collects and analyses data on all deaths in children <16yrs nationally. Reports provide accurate data on the incidence of all paediatric deaths (aged 28days - 15 completed years); Deaths by age and gender Deaths …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 EHDS health public-health registry statistics -
National Audit of Hospital Mortality (NAHM)
In-hospital mortality patterns have been used internationally as one indicator of the quality of care. While there are a number of similar ways of doing this, the standardised mortality ratio (SMR) is the most commonly used approach for looking at …
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Irish National Orthopaedic Register (INOR)
INOR is an electronic point of care system, designed to collect demographic, clinical and implant component data on patients admitted to hospital for primary and revision arthroplasty surgery in hospitals nationally. Clinical and patient-reported outcome information is also collected at …
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Health Atlas Ireland
The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses and displays to inform decision makers at all levels from clinical practice to policy. Health …
Publisher: National Health Intelligence Unit · Updated: 2026-03-19 epidemiology health healthcare registry surveillance -
National Oncology Drugs Management System
The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme is the Oncology Drugs Management System, which is operated by the Primary Care Reimbursement Service (PCRS) on behalf of …
Publisher: National Cancer Control Programme · Updated: 2026-03-19 clinical-data health public-health registry