Results
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Lifeways Cross-Generation Cohort Study
Lifeways is a unique cohort study, designed to capture Irish longitudinal life-course data, by recruiting three generations of the same family. Participants, who are essentially well at baseline, are followed up over time. As outcomes or diseases slowly develop, baseline …
Publisher: UCD School of Public Health · Updated: 2026-03-19 EHDS epidemiology health registry surveillance -
Irish Prostate Cancer Registry of Ireland (IPCOR)
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. **Purpose:** To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate …
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Tusla - Performance and Activity Datasets
Datasets of key performance and activity metrics and indicators defined for Tusla services as follows: - Child Protection and Welfare Services; - Alternative Care Services (incl. foster care, residential care, aftercare, adoption); - Family Support Services; - Tusla Education Support …
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Irish National Rare Kidney Disease Registry
Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of expertise, which became a full member of the RITA European Reference Network in …
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European School Survey Project on Alcohol and Other Drugs (ESPAD)
Principal source of data on substance use among 15-16 year olds in Ireland, and their gaming, gambling and social media use. **Purpose:** ESPAD is a collaborative effort of independent research teams in more than 40 European countries and the largest …
Publisher: TobaccoFree Research Institute Ireland (TFRI) · Updated: 2026-03-19 EHDS health healthcare statistics -
Patient Care Report (PCR)
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient at ED/destination facility. In the event of an ambulance service not utilising the …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology healthcare registry surveillance -
Cardiac First Response Report (CFR Report)
The Cardiac First Response (CFR) report is a two-part patient record which is completed for every patient contact by a trained community first responder who attends an incident. The data is collected in line with the international Utstein style template …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology health surveillance -
Organisation for Economic Co-operation and Development (OCED) Health Data* (2017 template)
OECD Health Data, maintained by the OECD, enables analyses and lessons to be drawn from comparisons of the healthcare systems of the 35 member states. **Purpose:** The purpose of this data collection is to provide a comprehensive source of comparable …
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Patient Treatment Register (PTR)
The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date information on wait times for in-patient/day-case treatments and outpatient new appointments. **Purpose:** To report …
Publisher: National Treatment Purchase Fund · Updated: 2026-03-19 Ireland healthcare public-health registry surveillance -
National Self-Harm Registry Ireland (NSHRI) Previously National Self-Harm Registry Ireland)
The NSHRI is a national system of population monitoring for the occurrence of self-harm in Ireland. **Purpose:** The NSHRI is a national surveillance system which gathers information on hospital presenting self-harm at Emergency Departments in all hospitals across Ireland. The …
Publisher: National Suicide Research Foundation · Updated: 2026-03-19 EHDS clinical-data public-health registry -
The Irish Atopic Eczema Systemic Therapy Register (ASTAR)
ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-modulatory therapy (e.g. ciclosporin, azathioprine, methotrexate or biologic treatments). The study …
Publisher: National Skin Registry Solutions · Updated: 2026-03-19 EHDS epidemiology healthcare surveillance -
CervicalCheck (The National Cervical Screening Programme) CervicalCheck (National Cervical Screening Register)
CervicalCheck maintains a population register containing demographic data of eligible women and people with a cervix aged 25 to 65 for the purposes of screening. The screening interval for women aged between 25 to 29 years is three years and …
Publisher: National Screening Service · Updated: 2026-03-19 EHDS Ireland public-health registry statistics -
BreastCheck (The National Breast Screening Programme) Previously BreastCheck (National Breast Screening Register)
BreastCheck is a Government funded programme providing breast screening to women through a network of four static centres and a number of mobile units. Screening is offered to eligible women by personal invitation for a free mammogram on an area-by-area …
Publisher: National Screening Service · Updated: 2026-03-19 EHDS Ireland clinical-data public-health registry -
BowelScreen (The National Bowel Screening Programme) Previously Bowelscreen (National Bowel Screening Register)
BowelScreen maintains a population register containing demographic data of eligible men and women aged 59 to 70 for the purposes of screening. It also contains data so that men and women who have completed the BowelScreen home test kit (FIT) …
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Very Low Birth Weight Infants in the Republic of Ireland
Hospitals submit their data to the Vermont Oxford Network. The VON returns the data on the infants born in the Republic of Ireland to NPEC and this centre subsequently analyses it and publishes an annual report. General data from all …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 clinical-data epidemiology public-health -
Planned Home Birth in Ireland Audit
Self Employed Community Midwives (SECMs) in Ireland provide a home birth service on behalf of the Health Service Executive (HSE). Maternity records of midwifery care provided are sent by the SECM to the Designated Midwifery Officer (DMO) in their respective …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS Ireland epidemiology health -
National Audit of Severe Maternal Morbidity (Severe Maternal Morbidity Audit)
Designated severe maternal morbidity coordinators within all maternity units collate and submit data on women experiencing specific severe maternal morbidities and /or who require a higher level of care to the NPEC using a specific, detailed notification form. **Purpose:** To …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS Ireland epidemiology public-health -
Irish Paediatric Critical Care Audit (IPCCA)
This audit provides a complete account of activity and outcomes in all paediatric intensive care units providing critical care to children in the ROI. In addition to data from specialised paediatric critical care units and from transfer and retrieval services …
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Irish Hip Fracture Database (IHFD)
The Irish Hip Fracture Database (IHFD) is a web based system that uses the HIPE (Hospital In-patient Enquiry) portal infrastructure. It audits care standards and outcomes for patients with hip fractures. **Purpose:** Develop a prospective audit of case-mix, care standards …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 EHDS clinical-data epidemiology public-health surveillance -
Intensive Care Unit- Bed Information System (ICU-BIS)
Data collected by ICU-BIS falls into two categories; ICU occupancy data and COVID-19 specific patient data. ICU occupancy data; Total beds, Staffed /Open beds, occupied beds, reserved beds for new admission, patients cleared for discharge to a ward bed, available …