Results
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National Kidney Disease Surveillance System (NKDSS) and Quality Assurance Programme (QA)
The NKDSS is one of the largest linked longitudinal surveillance systems in Ireland. It captures both regional-level data from laboratory and regional HIPE systems and links this data to national datasets such as the ESKD registries and CSO Vital Statistics. …
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TILDA- The Irish Longitudinal Study on Ageing
TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs …
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European School Survey Project on Alcohol and Other Drugs (ESPAD)
Principal source of data on substance use among 15-16 year olds in Ireland, and their gaming, gambling and social media use. **Purpose:** ESPAD is a collaborative effort of independent research teams in more than 40 European countries and the largest …
Publisher: TobaccoFree Research Institute Ireland (TFRI) · Updated: 2026-03-19 EHDS health healthcare statistics -
Irish Biologic Therapies Register* (2014 template)
This register collects data on all patients attending the rheumatology service who receive biologic therapies (predominantly anti-TNF therapies). **Purpose:** To collect data on all patients attending the rheumatology service who receive biologic therapies, predominantly anti-tumour necrosis factor (anti-TNF therapies). **Coverage:** …
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Patient Care Report (PCR)
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient at ED/destination facility. In the event of an ambulance service not utilising the …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology healthcare registry surveillance -
National Organ Procurement Service Data Previously National Organ Procurement Service Statistics
All organ donations in the Republic of Ireland are coordinated through the National Organ Procurement Service in the ODTI. Ethical guidelines protect the interests of deceased organ donors, their families, and transplant recipients. **Purpose:** The purpose of this data collection …
Publisher: Organ Donation Transplant Ireland · Updated: 2026-03-19 epidemiology healthcare registry surveillance -
Patient Treatment Register (PTR)
The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date information on wait times for in-patient/day-case treatments and outpatient new appointments. **Purpose:** To report …
Publisher: National Treatment Purchase Fund · Updated: 2026-03-19 Ireland healthcare public-health registry surveillance -
National Self-Harm Registry Ireland (NSHRI) Previously National Self-Harm Registry Ireland)
The NSHRI is a national system of population monitoring for the occurrence of self-harm in Ireland. **Purpose:** The NSHRI is a national surveillance system which gathers information on hospital presenting self-harm at Emergency Departments in all hospitals across Ireland. The …
Publisher: National Suicide Research Foundation · Updated: 2026-03-19 EHDS clinical-data public-health registry -
BreastCheck (The National Breast Screening Programme) Previously BreastCheck (National Breast Screening Register)
BreastCheck is a Government funded programme providing breast screening to women through a network of four static centres and a number of mobile units. Screening is offered to eligible women by personal invitation for a free mammogram on an area-by-area …
Publisher: National Screening Service · Updated: 2026-03-19 EHDS Ireland clinical-data public-health registry -
National Maternity data- Robson Ten Group Classification system (TGCS)
Designated data coordinators within all maternity units collate and submit data on Robson TGCS to the NPEC. **Purpose:** The Robson Ten Group Classification System (TGCS) is a classification system by which all perinatal events and outcomes can be compared. The …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 epidemiology public-health statistics -
Perinatal Mortality National Clinical Audit Previously Perinatal Mortality Surveillance System
Designated perinatal mortality data coordinators within all maternity units collate and submit data on all perinatal deaths occurring in their unit to the NPEC using a specific, detailed notification form. **Purpose:** To address the investigation of perinatal mortality in Ireland …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS Ireland public-health statistics surveillance -
National Audit of Severe Maternal Morbidity (Severe Maternal Morbidity Audit)
Designated severe maternal morbidity coordinators within all maternity units collate and submit data on women experiencing specific severe maternal morbidities and /or who require a higher level of care to the NPEC using a specific, detailed notification form. **Purpose:** To …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS Ireland epidemiology public-health -
National Paediatric Mortality Register (NPMR)
The Paediatric Mortality Register collects and analyses data on all deaths in children <16yrs nationally. Reports provide accurate data on the incidence of all paediatric deaths (aged 28days - 15 completed years); Deaths by age and gender Deaths …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 EHDS health public-health registry statistics -
National Audit of Hospital Mortality (NAHM)
In-hospital mortality patterns have been used internationally as one indicator of the quality of care. While there are a number of similar ways of doing this, the standardised mortality ratio (SMR) is the most commonly used approach for looking at …
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Irish National Orthopaedic Register (INOR)
INOR is an electronic point of care system, designed to collect demographic, clinical and implant component data on patients admitted to hospital for primary and revision arthroplasty surgery in hospitals nationally. Clinical and patient-reported outcome information is also collected at …
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Irish National Audit of Stroke (INAAS)
The Irish National Audit of Stroke is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for patients with stroke. **Purpose:** Aim: To conduct audit of stroke care …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 clinical-data public-health statistics surveillance -
Intensive Care Unit- Bed Information System (ICU-BIS)
Data collected by ICU-BIS falls into two categories; ICU occupancy data and COVID-19 specific patient data. ICU occupancy data; Total beds, Staffed /Open beds, occupied beds, reserved beds for new admission, patients cleared for discharge to a ward bed, available …
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National Haemophilia Register
Cloud based National electronic record for all people with haemophilia and other related bleeding disorders. Interfaced to St James’s Hospital Patient Administration System/EPR (St James’s Hospitals electronic patient record). Also accessed by Children’s Health Ireland at Crumlin, Cork University Hospital …
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National Cancer Registry Ireland (NCRI)
The National Cancer Registry has been collecting comprehensive information on cancer and related tumours for the resident population of the Republic of Ireland since 1994. The information collected is used in research into the causes of cancer, in education and …
Publisher: National Cancer Registry Ireland · Updated: 2026-03-19 EHDS clinical-data public-health registry -
National Oncology Drugs Management System
The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme is the Oncology Drugs Management System, which is operated by the Primary Care Reimbursement Service (PCRS) on behalf of …
Publisher: National Cancer Control Programme · Updated: 2026-03-19 clinical-data health public-health registry