Results
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Lifeways Cross-Generation Cohort Study
Lifeways is a unique cohort study, designed to capture Irish longitudinal life-course data, by recruiting three generations of the same family. Participants, who are essentially well at baseline, are followed up over time. As outcomes or diseases slowly develop, baseline …
Publisher: UCD School of Public Health · Updated: 2026-03-19 EHDS epidemiology health registry surveillance -
Irish Prostate Cancer Registry of Ireland (IPCOR)
Clinical and patient reported data from men with prostate cancer from the time of diagnosis and throughout treatment. **Purpose:** To conduct a unique, prospective, national, longitudinal clinical study with patient reported outcomes on men diagnosed with and treated for prostate …
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Irish National Rare Kidney Disease Registry
Established initially with support from Science Foundation Ireland and linked to the RKD biobank. It is a core element of the HSE-designated Vasculitis Ireland Network centre of expertise, which became a full member of the RITA European Reference Network in …
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TILDA- The Irish Longitudinal Study on Ageing
TILDA collects information on all aspects of health, economic and social circumstances from people aged 50 and over in a series of data collection waves once every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs …
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Road Fatalities and Injury Collision Statistics
Principal source of data and information on fatal and injury collisions on Irish roads. **Purpose:** To collect, collate, analyse and disseminate the road injury collision data, with the aim of creating and maintaining an accurate and timely dataset of road …
Publisher: Road Safety Authority · Updated: 2026-03-19 EHDS epidemiology health public-health surveillance -
Patient Care Report (PCR)
The Patient Care Report (PCR) is the principal source of patient data collection pre-hospital from time of call receipt by the pre-hospital practitioner to handover of patient at ED/destination facility. In the event of an ambulance service not utilising the …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology healthcare registry surveillance -
Cardiac First Response Report (CFR Report)
The Cardiac First Response (CFR) report is a two-part patient record which is completed for every patient contact by a trained community first responder who attends an incident. The data is collected in line with the international Utstein style template …
Publisher: Pre-Hospital Emergency Care Council · Updated: 2026-03-19 EHDS epidemiology health surveillance -
National Organ Procurement Service Data Previously National Organ Procurement Service Statistics
All organ donations in the Republic of Ireland are coordinated through the National Organ Procurement Service in the ODTI. Ethical guidelines protect the interests of deceased organ donors, their families, and transplant recipients. **Purpose:** The purpose of this data collection …
Publisher: Organ Donation Transplant Ireland · Updated: 2026-03-19 epidemiology healthcare registry surveillance -
Patient Treatment Register (PTR)
The Patient Treatment Register (PTR) is a register of surgical and medical patients on in-patient/day-case and outpatient waiting lists in Ireland. It provides up to date information on wait times for in-patient/day-case treatments and outpatient new appointments. **Purpose:** To report …
Publisher: National Treatment Purchase Fund · Updated: 2026-03-19 Ireland healthcare public-health registry surveillance -
National Spinal Injuries Unit
This is a register for all Spinal patients referred for consultation/ admission to the Mater Hospital. It uses Patient Advocate Tracking System (PATS) software. **Purpose:** To capture all spinal injury consultations, referrals, OPD & admissions to the Mater Hospital (does …
Publisher: National Spinal Injuries Unit · Updated: 2026-03-19 EHDS Ireland epidemiology surveillance -
The Irish Atopic Eczema Systemic Therapy Register (ASTAR)
ASTAR is an observational study that aims to collect data on children (no lower age cut off) and adults with atopic eczema, Starting on or switching to another systemic immuno-modulatory therapy (e.g. ciclosporin, azathioprine, methotrexate or biologic treatments). The study …
Publisher: National Skin Registry Solutions · Updated: 2026-03-19 EHDS epidemiology healthcare surveillance -
Global Registry of Alopecia Areata Disease Severity and treatment Safety - Ireland (GRASS - Ireland)
GRASS-Ireland is an observational study collecting and analysing the data of adults and children with Alopecia Areata (AA) in Ireland over their lifetime. As an encounter-based registry, data will be collected from each interaction for AA-specific care by investigators at …
Publisher: National Skin Registry Solutions · Updated: 2026-03-19 clinical-data public-health surveillance -
BowelScreen (The National Bowel Screening Programme) Previously Bowelscreen (National Bowel Screening Register)
BowelScreen maintains a population register containing demographic data of eligible men and women aged 59 to 70 for the purposes of screening. It also contains data so that men and women who have completed the BowelScreen home test kit (FIT) …
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Perinatal Mortality National Clinical Audit Previously Perinatal Mortality Surveillance System
Designated perinatal mortality data coordinators within all maternity units collate and submit data on all perinatal deaths occurring in their unit to the NPEC using a specific, detailed notification form. **Purpose:** To address the investigation of perinatal mortality in Ireland …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS Ireland public-health statistics surveillance -
Neonatal Therapeutic Hypothermia Audit
For the national neonatal TH review, medical records are the primary source of information. Data were collected on site in the 19 maternity units/hospitals and neonatal intensive care units or special care baby units (NICU/SCBU) in the Republic of Ireland. …
Publisher: National Perinatal Epidemiology Centre · Updated: 2026-03-19 EHDS public-health registry surveillance -
Major Trauma Audit (MTA)
The Major Trauma Audit (MTA) will provide a framework for hospitals to collect standardised data on patient injury, care processes and patient outcomes. The National Office of Clinical Audit (NOCA) will provide the frameworks and operational support for the introduction …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 Ireland epidemiology surveillance -
Irish National Audit of Stroke (INAAS)
The Irish National Audit of Stroke is a web based system that uses the HIPE portal infrastructure. It audits against agreed standards and guidelines and reports on outcomes for patients with stroke. **Purpose:** Aim: To conduct audit of stroke care …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 clinical-data public-health statistics surveillance -
Irish Hip Fracture Database (IHFD)
The Irish Hip Fracture Database (IHFD) is a web based system that uses the HIPE (Hospital In-patient Enquiry) portal infrastructure. It audits care standards and outcomes for patients with hip fractures. **Purpose:** Develop a prospective audit of case-mix, care standards …
Publisher: National Office of Clinical Audit · Updated: 2026-03-19 EHDS clinical-data epidemiology public-health surveillance -
Health Atlas Ireland
The open source application enables role-based web access to key health related datasets that enables ad-hoc queries, area profiling, quality of care, and geo-spatial analyses and displays to inform decision makers at all levels from clinical practice to policy. Health …
Publisher: National Health Intelligence Unit · Updated: 2026-03-19 epidemiology health healthcare registry surveillance -
Out of Hospital Cardiac Arrest Register (OHCAR)
A project to set up an Irish Out-of-Hospital Cardiac Arrest Register (OHCAR) was established in November 2007 in accordance with the recommendations of the Report of the Task Force on Sudden Cardiac Death (2006). The purpose of the Register is …
Publisher: National Ambulance Service OHCAR · Updated: 2026-03-19 EHDS epidemiology registry statistics surveillance