Cleft Database Previously National Cleft Database

The National Cleft Database enables the stakeholders to monitor the frequency and incidence of cleft in Ireland. It facilitates audit, research and reporting on the quality of cleft care. It supports planning, development and coordination of multidisciplinary services across hospitals and community services. The cleft database incorporates the minimum records required to comply with the audit requirements as stipulated by Eurocran for Cleft Lip and Palate for children. Statistical information on an annual basis can be used for benchmarking purposes within the Craniofacial Society of Great Britain and Ireland. **Purpose:** The purpose is to gather centralised information on children or adults who present with cleft lip and/or palate which aids delivery of follow-up care, audit and research. **Coverage:** National — participation is voluntary. Cleft is a lifelong condition and data collection starts from antenatal referral and is maintained throughout life with patient consent.

Health Category

Language

Eng

Access Rights

Metadata

Field Value
Access Rights http://publications.europa.eu/resource/authority/access-right/RESTRICTED
Frequency http://publications.europa.eu/resource/authority/frequency/ANNUAL
Id d3595b75-a657-4826-9cc9-54825b20b182
Identifier NDC-0017
Isopen True
Issued 2002-01-01
License Id cc-by
License Title Creative Commons Attribution
License Url http://www.opendefinition.org/licenses/cc-by
Max Typical Age 75
Metadata Created 2026-03-19T17:16:36.684858
Metadata Modified 2026-03-19T17:16:36.684861
Min Typical Age 18
Modified 2025-05-30
Name cleft-database-previously-national-cleft-database-17
Notes The National Cleft Database enables the stakeholders to monitor the frequency and incidence of cleft in Ireland. It facilitates audit, research and reporting on the quality of cleft care. It supports planning, development and coordination of multidisciplinary services across hospitals and community services. The cleft database incorporates the minimum records required to comply with the audit requirements as stipulated by Eurocran for Cleft Lip and Palate for children. Statistical information on an annual basis can be used for benchmarking purposes within the Craniofacial Society of Great Britain and Ireland. **Purpose:** The purpose is to gather centralised information on children or adults who present with cleft lip and/or palate which aids delivery of follow-up care, audit and research. **Coverage:** National — participation is voluntary. Cleft is a lifelong condition and data collection starts from antenatal referral and is maintained throughout life with patient consent.
Num Resources 0
Num Tags 4
Number Of Records 1178261
Number Of Unique Individuals 118715
Private False
Provenance The data is compiled from several sources i.e. the cleft database registration pro forma, healthcare records, hospital patient registrations system (IPMS) and audit records such as patients completed Cleft Q questionnaires and records from each discipline of the multidisciplinary cleft care team.
Title Cleft Database Previously National Cleft Database
Type dataset

No history available for this dataset.