Cleft Database Previously National Cleft Database
The National Cleft Database enables the stakeholders to monitor the frequency and incidence of cleft in Ireland. It facilitates audit, research and reporting on the quality of cleft care.
It supports planning, development and coordination of multidisciplinary services across hospitals and community services.
The cleft database incorporates the minimum records required to comply with the audit requirements as stipulated by Eurocran for Cleft Lip and Palate for children. Statistical information on an annual basis can be used for benchmarking purposes within the Craniofacial Society of Great Britain and Ireland.
**Purpose:** The purpose is to gather centralised information on children or adults who present with cleft lip and/or palate which aids delivery of follow-up care, audit and research.
**Coverage:** National — participation is voluntary.
Cleft is a lifelong condition and data collection starts from antenatal referral and is maintained throughout life with patient consent.
Health Category
Theme
Language
Access Rights
- Organization
- Dublin Cleft Centre
- License
- Creative Commons Attribution
Metadata
| Field | Value |
|---|---|
| Access Rights | http://publications.europa.eu/resource/authority/access-right/RESTRICTED |
| Frequency | http://publications.europa.eu/resource/authority/frequency/ANNUAL |
| Id | d3595b75-a657-4826-9cc9-54825b20b182 |
| Identifier | NDC-0017 |
| Isopen | True |
| Issued | 2002-01-01 |
| License Id | cc-by |
| License Title | Creative Commons Attribution |
| License Url | http://www.opendefinition.org/licenses/cc-by |
| Max Typical Age | 75 |
| Metadata Created | 2026-03-19T17:16:36.684858 |
| Metadata Modified | 2026-03-19T17:16:36.684861 |
| Min Typical Age | 18 |
| Modified | 2025-05-30 |
| Name | cleft-database-previously-national-cleft-database-17 |
| Notes | The National Cleft Database enables the stakeholders to monitor the frequency and incidence of cleft in Ireland. It facilitates audit, research and reporting on the quality of cleft care. It supports planning, development and coordination of multidisciplinary services across hospitals and community services. The cleft database incorporates the minimum records required to comply with the audit requirements as stipulated by Eurocran for Cleft Lip and Palate for children. Statistical information on an annual basis can be used for benchmarking purposes within the Craniofacial Society of Great Britain and Ireland. **Purpose:** The purpose is to gather centralised information on children or adults who present with cleft lip and/or palate which aids delivery of follow-up care, audit and research. **Coverage:** National — participation is voluntary. Cleft is a lifelong condition and data collection starts from antenatal referral and is maintained throughout life with patient consent. |
| Num Resources | 0 |
| Num Tags | 4 |
| Number Of Records | 1178261 |
| Number Of Unique Individuals | 118715 |
| Private | False |
| Provenance | The data is compiled from several sources i.e. the cleft database registration pro forma, healthcare records, hospital patient registrations system (IPMS) and audit records such as patients completed Cleft Q questionnaires and records from each discipline of the multidisciplinary cleft care team. |
| Title | Cleft Database Previously National Cleft Database |
| Type | dataset |
No history available for this dataset.